Information for Patients
HPS Research Studies
This is a short video clip about why people with HPS volunteer to participate in medical research studies.
HPS Research
This links to a list of current and former studies involving patients with Hermansky-Pudlak Syndrome.
The TSC Alliance offers several resources about clinical trials, including:
Clinical Trials
A web page, including extensive FAQs.
Intro to Clinical Trials Video
An introductory educational video about clinical trials.
Educational Brochure
“A basic introduction to clinical trials”
TSC Clinical Trial Search Tool
ATS Patient Information Series
The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider.
